Isaiah 40:31~ But those who hope in the LORD will renew their strength.
They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.

Saturday, June 1, 2013

Stupid Love... When Love Makes You Stupid

I've been a victim to stupid love for years. Stupid love is when you go against your better judgement or what your common sense tells you not to do. It's a lot like immaturity, but you call it something else. In my case I call it stupid.
    A couple recent examples of my own kind of stupid love?
    Ok... here we go:

    Example #1: Last week I realized I was running out of time to sign my daughter up for art camp. The reason I had waited? Money. I didn't have $160 to dedicate to a non-essential. What did I do on Thursday? I signed her up anyway. She's a great kid who loves art and who has a lot of talent. Oh, and this is no regular art camp... (can you see where the stupid comes in?). So on Monday she'll be at art camp. She's of course thrilled.

    Example #2: About 10 days ago I decided it might be a good idea to homeschool Max this fall. It all made great sense. He had a horrible year academically and to some degree socially. His anxiety has been at an all time high, he got an "F" in math his last quarter, and I am tired of dancing with the school district in this weird kind of disability/non-sped, recognition/non-recognition of Max's diagnosis. I don't know what the answer is, but I don't necessarily think they do either.

    About 6 days later, I snapped out of stupid when Max had one of his blowouts. Witnessing him rage out of control I was slapped back into reality. There was a reason I stopped homeschooling Max in 2nd grade and this was it. That particular tantrum was unique... I can't say what exactly made it different, but it was as though God himself was telling me, this is not the time for homeschooling. It wouldn't be a healthy choice for either one of us.  Maybe someday... if God miraculously transforms us (both) in all the right ways homeschooling could be an option.

    I wonder if a little bit of stupid is what makes us good parents? I was thinking about this today. I mean isn't being a good parent all about sacrifice? At the same time, we do have the awesome responsibility of modeling sober (as in non-emotional, wishy-washy-free) decision making skills.

    What is your stupid love story?
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      Monday, May 27, 2013

      Almost Cracked Yesterday... Blame it on Autism

      I have been feeling very weak lately... with just a dash of hopelessness to make things feel even more desperate. I can usually shake my fears and anxiety with prayer and the pep talks I've learned to give myself. The frustration, disappointment, sensory overload (on my part), and flat out anger that has been building inside me let loose yesterday... I heard myself wail "He's been screaming since the day he was born!" I cried harder than I have in years. It was so intense I really thought my eyes were going to rupture.... I tried changing the way I was breathing to ease the tension in my face and started to hyperventilate. I could feel the veins in my neck strain as I attempted to keep it together and then I almost threw up. The tears continued for well over an hour.  Looking in the mirror today, there is no evidence of the trauma my body felt just a few hours ago. Max has marks though... self-inflicted nail scratches from jaw to chest on either side of his neck.

      We've had a hard time. Since the very beginning it's been hard. I keep waiting for things to get better, but they never really do. They just change. Yesterday he was screaming at the top of his lungs and jumping up and down because he wanted ice cream. He's 12 years old and looked like a 135 lb toddler. He wouldn't stop screaming. I usually don't cry in that situation. Rarely do I cry. I asked him to calm down. I told him that if he wanted ice cream he'd have to settle down and wait until it was time for ice cream, rather than to demand it and in such an immature way. He screamed at the top of his throat. The house shook. His sister started yelling back at him. His dad acted like it was just another day in the life of Max. I on the other hand came unglued. I just started crying... and hard.

      Last week I was actually thinking of pulling him from school this fall and homeschooling. What was I thinking? If I'm this tired and stressed, what would I be doing to my health if I brought him home? On the other hand, he is doing very poorly at school. We don't approve of most the boys he associates with, and he's completely lost his faith. He claims to be an atheist. I feel like I've failed him in every way a mom could fail her son. No wonder I almost cracked yesterday.

      Please have Max in your prayers. This isn't his real name, but God will know who you are praying for. Pray for me too. I need to be strong. It has been a long 12 years, but I know God has plans for my son. I believe this. I really do.

      Pray with me that Max will bond with at least one young man at the youth group he has been attending on Sunday evenings for the past month. Someone more mature in his faith who will help lead him back to Christ. A true friend and mentor, who accepts him for who he is... and all the potential he has to become.
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        Tuesday, May 21, 2013

        Calming Frizzy Hair

        I am a frizzy-haired freak... or so that's what I feel like most the time! Especially when it's humid... and it's spring, so it's humid! We live in the mid-west where the humidity is high and my hair could serve as a weather communication device. They could put my photo in a corner on your television screen and you'd know when to pile on the hair-care products. No joke! The texture of my hair coupled with the region I live in make for a frizzy hair nightmare worthy of a before and after photo. Not gonna do that today though! lol

        A hairdresser friend of mine told me I should try layering products. I've been using both a wash out and leave in conditioner every day, as well as using a product that's supposed to knock down the frizz. The new regimen is working OK... not really where I want my hair, but it's better than it was a couple weeks ago when I was trying to tame the frizz with Moroccan oil.

        I've read that keratin hair treatment is great for controlling frizz, so I guess any regimen that incorporates a keratin treatment would be worth trying. My hair is naturally curly-ish... I say -ish because depending on the day and the cut I can be anything from wavy to curly. I think some anti-frizz hair treatments also take out the curl. I am soooo not concerned with the amount of curl in my hair! I only want the frizz to disappear.

        Do you have frizzy hair? Have you tried a keratin treatment? Do you have a hair treatment regimen that works?

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        Update on Max

        Max was discharged from the mental health hospital 5 days after his admission. Since his release, I have seen some moderate improvements. I believe much of his depression was caused by an anti-depressant. We really have to be careful what type of medication we put our kids on... it's ok to question doctors. It should also be noted that not all our children respond the same way to medications.

        Other contributing factors to Max's depression are likely situational based.... stemming from increasing school-related anxiety, a major change in his diet (from completely gluten and casein free to eating like a regular 12 year-old while taking digestive enzymes), and then there's puberty. Ugh!

        In any case, we can still use your prayers. We only have 2 days of school left, so there will be more time for me to share. I wish I could be the mom to help you with your own Aspie, but at the moment all I can do is tell you that you're not alone. It's an uphill climb. Some days are good, some not so much.

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        Monday, April 22, 2013

        Photo Booth Rentals for Weddings and Parties... Let Your Guests Play!

        I never knew you could rent a photo booth, but what a cool idea. Have you ever been to a wedding where they've had those little disposable cameras on the table? That's a great idea for the bride and groom who want all those candid shots of their guests enjoying the reception. Where does that leave the guests though?

        What if your guests could dress up with props, step into the photo booth (as many as 8 guests at a time) and print out a picture seconds later that would also appear on a live slide show for all the guests to see? Oh, but what about the wedded couple?  No worries! They'll get a scrapbook and a DVD filled with all the great photos of friends and family captured from the Capture Pod! I absolutely love this idea!

        If you're looking for a photo booth rental and live in New York, you may want to do an Internet search using the search terms: photo booth rental NYC

        Have you ever been to a party that offered a photo booth? What do you think of the idea?

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        Tomorrow Might be His Last Day

        At the children's mental health hospital that is. He's been a day patient there since Thursday and tonight the hospital told us he could be dismissed as early as tomorrow afternoon.

        No new diagnosis has been give, no dual diagnosis as I'd suspected either... just the same diagnosis of Aspergers. My son is having what I'd call mild hallucinations. I guess I expected the hospital to take the stories he's sharing with me a lot more seriously. The message I got was that as long as the voices he hears aren't telling him to hurt himself or others, we don't have to worry too much. He might just have to live with them.

        I wonder how many other kids with Aspergers hear voices? How many thing they've been chosen to be part of some sort of special mission?

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        Parents of Special Needs Children... Benefits of a Weekend Getaway

        Remember my previous post? One of the things I've been dreaming of is a weekend getaway. I think parents of special needs kids should take annual retreats away from the kids. It's not that easy to accomplish, but if at all possible, don't deny yourself a healthy weekend just for yourself. Taking care of ourselves isn't just a gift we give ourselves, it's a gift we give to our children. They need us to stay healthy and strong, refreshed and well rested.

        I am currently on the Cullasaja Club website, looking at all the features this North Carolina resort has to offer... including swimming, boating, tennis, golf, a wellness and fitness center, and gourmet food all at the foot of a beautiful mountainside. So picturesque, so far away from the everyday, so waiting for someone like me to explore and enjoy.

        This resort is not child free... so you can take your kids, but wouldn't it be nice to go without them? Not selfish at all... we all need a break. If you are a parent of a special needs child like I am, you know all to well how beneficial a weekend away would be. Even if you've never taken a weekend off... you still know.

        Oh, to dream.

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